"Come to me, all who labor and are heavy laden, and I will give you rest."
So I need to find my rest in Jesus and just keep fighting with His strength for my son's well-being. Got it. Well, as much as I can. Until this afternoon when I need to repeat the Gospel to myself because I'm living as though I am not freed from the burdens of this life.
If you remember, back in October we were testing Abraham for crazy diseases and syndromes. Thankfully, the tests all came back negative. But that doesn't change the fact that he still had/has some of the symptoms of those things. He was and is small. Now, that in and of itself isn't an issue for all kids, but it is getting to a point where it is worrisome for Abe. He was born in the 40th percentile and has slowly slipped each month down to his current standing in the 2nd percentile. His worst drop was this month when he only gained 1 ounce. In a whole month. The doctors want him gaining 4-5 ounces a WEEK. Ugh.
So after much looking into it, the issue does not appear to be with the quantity of food he's getting. In other words, it's not that nursing him isn't working (because I know that's where a lot of minds go based on the immediate questions I get when talking to people about this). I make enough to satisfy him. So the problem could be many, many different things. It could be that he has some sort of GI problem that makes him not want to eat as much as he truly needs to grow. Or that he's eating plenty, but not absorbing nutrients properly. Or that he spits up too many of his calories to grow. Or that he's allergic to something in my milk and that's causing inflammation and growth issues. We just don't know, yet.
So for right now we are trying to maximize the number of calories he takes in. This means feeding him bottles of breastmilk that have formula added to them to increase the calorie count per ounce. He doesn't like this idea very much, but each day is getting a little better. Meanwhile, my house is falling apart as I try to balance the added time and energy involved to pump, make bottles, wash pumping supplies and bottles, and feed bottles. It's reminding me why I like just nursing so much. We will check his weight again on Friday to see if this protocol is doing any good for his chubbiness.
But, the new feeding plan doesn't really tell us what is wrong; so tomorrow he's having a GI scope done of his esophagus, stomach, and small intestine. I'm less than thrilled about the procedure. He will be put under general anesthesia and be intubated so that he doesn't spit up and cut off his own airway. They will do biopsies along the way as well as look for any physical abnormalities.
Abraham, in the meantime, is his happy go-lucky self most of the time. He's unfazed by the worry of the adults around him. I will keep you all updated on how tomorrow goes, although it will take a week to get any results from the tests.